Living With Thalassemia
Laurice Compagno M.A., C.C.L.S. - Albany, CA

Living with a chronic illness has had an extensive impact on my life. Thalassemia has shaped how I live and perceive my life and it is a driving force in shaping my personality. Thalassemia and the physical challenges that accompany this disease have created my intense passion for living and a deep appreciation for health. Each day is a gift to be cherished.

Although I do not remember being diagnosed at 14 months of age, I remember being sick often as a child. Doctors' appointments, medical procedures, and surgeries are a routine part of life. Thalassemia is a high maintenance disease and, like many chronic illnesses, survival is often a fight. Therefore, I have a heightened awareness of my own mortality. I do not fixate on death, but I definitely do not plan far ahead into the future. This is not to say that I do not have a plethora of hopes and dreams.

Thalassemia has made me determined and has given me a strong will. Having a chronic illness has also taught me to be empathetic. I love people and my family and friends are my greatest treasures. My ultimate goal is to be the best person that I can be. I do not know how long I will be on this earth, but my desire is to make a difference in people's lives. Quality of life is more meaningful than quantity. <page 2 > <page 3>