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Life Stages: Adulthood
The responsibilities of adult life can get even more
complicated in the presence of a chronic illness. Adults face the challenge
of maintaining relationships, work, medical insurance, and managing an
often complicated medical disease. For some, reaching adulthood may also
mean a change in their system of medical care from a pediatric setting
to an adult setting. Compliance with medical management continues to be
an issue as patients balance the issues of the use of invasive medical
procedures and quality of life. Please read Proposal: Living as an Adult
in Pediatric World in our Patient Forum Section
What you can do as an adult:
- Continue to get help and support from others, including
your health care professionals, family and friends.
- If you have not already, contact the Thalassemia
Action Group for support and to keep updated on new advances in thalassemia
care. Phone: (800)935-0024 or (800)522-7222. Email:
ncaf@aol.com.
- Work with a social worker or a legal action group
to ensure that you know your rights in employment and insurance situations.
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