|
Life Stages: Infancy
 Most
families find out about their child's diagnosis shortly after birth. Even
for families who may be familiar with thalassemia, this can be a difficult
time. Adjusting to a new diagnosis can be challenging. You will be getting
lots of new information and meeting lots of new health care providers.
Expect your child to reach normal developmental milestones.
What you can do:
- Use you support network.
Talk with family members and friends who have been helpful in the past.
You may even want to bring in part of your support network when you
see the doctor. If you don't know someone with your child's disease,
think about asking your doctor's office to introduce you to another
family.
- It's okay to ask questions
and to ask them more than once. Try to pay attention to how you manage
information; some families prefer information in writing, some families
prefer to hear less information at once. If you know your preference,
share it with your health care providers.
- Take care of yourself.
Your ability to take care of your child is directly related to how you
are doing. Take time to relax, participate in fun activities, and enjoy
the new member of your family.
|
