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Story of an Alpha Thalassemia Baby

Thalassemia at UCSF Benioff Children's Hospital Oakland

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Thalassemia Adoption Clinic

adoption clinic The Center provides active support for families considering international adoption of children with thalassemia major, and hosts an annual comprehensive clinic in Oakland for recently adopted children.

At our last clinic in July 2016, families who adopted a child from China with thalassemia came to our center for an annual comprehensive visit and consultation with our medical team. We saw families from five states, some traveling as far away as Oklahoma. Patients and families met over two days in our clinic with thalassemia specialists, endocrinologists, nutritionists, and licensed clinical social workers.

That evening, families attended a dinner and talk: The children participated in a program by Dancin Power, a non-profit organization that teaches interactive dance classes to patients facing chronic and life-threatening illnesses.

Parents listened to several speakers discussing topics related to thalassemia such as fertility, nutrition and supplements, endocrine Issues and gene therapy. Afterwards, speakers presented talks during dinner and were part of a panel for an informal question-and-answer session. The speakers who presented at the Dinner Talk were Dr. Mark Walters, Dr. Titi Singer, Dr. Ash Lal, Dr. Elliott Vichinsky, Dr. Tariq Ahmad, and Ellen Fung, PhD.

adoption clinic adoption clinic adoption clinic adoption clinic

Updated 1/5/2017

Northern California Comprehensive Thalassemia Center
UCSF Benioff Children's Hospital Oakland
747 52nd Street, Oakland CA 94609   •   Phone: (510) 428-3347   •   Fax: (510) 450-5647
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